OUR CHARITIES - EPILEPSY ACTION & THE SICK KIDS FRIENDS FOUNDATION

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Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 600,000 people with epilepsy, as well as their friends, families, carers, health professionals and the many other people on whose lives the condition has an impact.

As well as campaigning to improve epilepsy services and raise awareness of the condition, we offer assistance to people in a number of ways including a national network of branches, accredited volunteers, regular regional conferences and freephone and email helplines.

Epilepsy Action's Vision:


- We exist to improve the lives of everyone affected by epilepsy.

To do this we must ensure that all people with epilepsy…
have specialist health care and treatment for their condition

and
can lead their lives free of stigma, prejudice and discrimination. 


Within ten years we aim to see…

  • Fewer epilepsy related deaths.
  • Rates of epilepsy misdiagnosis going down.
  • More people achieving seizure control.
  • Fewer people having harmful side effects from anti-epileptic drugs.
  • People with epilepsy informed about their condition and their views influencing their care and treatment.
  • A reduction in the indicators of stigma.
  • Evidence of positive changes in public attitudes.
  • Evidence of greater social inclusion of people with epilepsy.

The Edinburgh Children's Hospital Charity support and complement the work of Edinburgh's Royal Hospital for Sick Children (The Sick Kids) as well as other children’s healthcare settings across Scotland.

Their aim is to make sure every one of the 100,000 children who visit the hospital each year, & the many more being supported in local communities, receive the very best of care. 


Although the majority of patients come from the Lothians area, the Royal Hospital for Sick Children, Edinburgh is also a specialist centre for certain medical areas and so The Edinburgh Children's Hospital Charity supports children from across the whole of Scotland, through the distribution of their funds.

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The Edinburgh Children's Hopsital Charity believe that nothing should get in the way of being a child. 


- "We exist to transform the experiences of children and young people in hospital so they can be a child first and a patient second."


Because of them:

  • Children and young people’s lives are less interrupted by illness.
  • Children and young people are less scared of hospital and have a positive experience.
  • Children and young people’s families are better supported and comforted.
  • Children and young people have an improved experience of healthcare in their community.
The Edinburgh Children's Hospital Charity also fund major equipment that is used for medical purposes, like that of the Ward 7 Video Telemetry Equipment used to test if Katie was eligible for major transformative brain surgery.